Survivorship Guidebook – Pediatric Brain Tumors
Finishing treatment for a pediatric brain tumor is a major milestone for families. It’s also the start of a new journey with a new set of challenges. This Survivorship Resource Guidebook is designed to help you navigate life after treatment ends.
Transitioning from active treatment to life beyond cancer presents new challenges and uncertainties.
The Pediatric Brain Tumor Foundation (PBTF) in the United States of America offers this Survivorship Resource Guidebook, a comprehensive resource designed to assist families during this pivotal time.
Developed in collaboration with survivors, caregivers, and experts, the guidebook provides practical tools, including questions to ask about long-term follow-up care, templates for managing medical information, and heartfelt insights from other families. While this guidebook offers valuable general information, please note that it is a US-based resource and may not fully align with the Australian healthcare system. For more details and to access the guidebook, visit the PBTF’s website here.
