Understanding Langerhans Cell Histiocytosis (LCH)
Langerhans cell histiocytosis (LCH) is a rare disorder that can affect one or multiple parts of the body, including bones, skin, the endocrine system, and even the brain.
While it’s not yet clear whether LCH is a form of cancer or a cancer-like disease, it is treated in ways similar to cancer and monitored closely.
The symptoms of LCH vary depending on where it appears in the body and may include skin rashes, bone pain, or issues related to the lungs, liver, or hormone regulation. Your child’s medical team will usually run a series of tests to confirm a diagnosis and determine how far the condition has spread.
Some children may be more at risk due to family history or parental exposure to certain chemicals, although the causes of LCH are not fully understood.
Treatment and recovery depend on the areas affected and how the condition responds over time. With the right care, many children go on to live full, healthy lives.
This website includes evidence-based resources to help you better understand LCH, what to expect, and how to support your child moving forward.
