Whether you’re a parent, carer, teen or young adult, this website brings together evidence-based resources to help you feel supported and informed as your family transitions from treatment into life beyond cancer.
Our goal is simple: to make it easier to find trusted guidance for the everyday moments, unexpected hurdles and long-term care that follow cancer treatment. We know that recovery looks different for everyone. That’s why we’ve created a resource library that’s easy to explore, tailored to your needs and grounded in research and lived experience.
The resources come from a wide network of Australian and international experts – including researchers, clinicians, hospitals and cancer support organisations – to reflect some of the real needs of families.
They’re grounded in evidence, but written in plain language, so you can find what you need without the overwhelm.
Because no family should have to figure this out alone.
Evidence-based
Most of these resources have been grounded in research and developed by experts in childhood cancer care.
Supportive
Compassionate, practical tools and information to help families feel informed and understood.
Tailored
Developed specifically for children, teens, and families – not just for cancer care, but life beyond it.
Kids Beyond Cancer is part of the RECOVER project, a research initiative led by a team of expert clinicians and researchers at Queensland University of Technology (QUT) and co-designed with patients and families with experience of childhood cancer.
The RECOVER project aims to improve care for children and families as they transition into life beyond treatment, by introducing a consistent, evidence-based Model of Care for follow-up, survivorship and palliative care. Underpinned by the Optimal Care Pathway for Paediatric Oncology, this approach seeks to ensure that every child receives coordinated, high-quality care after treatment ends — not just in the hospital, but as part of everyday life.
The team is focused on reducing gaps in services, improving communication between clinical teams and families and making sure support is proactive, not reactive. This includes developing standardised assessments, clear documentation and better tools to help families manage their child’s health and wellbeing over time.
Kids Beyond Cancer is one of the practical outcomes of this work — created to ensure that families have easy access to trusted, evidence-based resources in one place that are easy to understand and tailored specifically for children and young people.
She is currently completing a MPhil at QUT seeking to better understand the information and communication needs of carers of children with cancer transitioning to surveillance care.
Melanie has led work in national data collection, transition from paediatric to adult services, and consumer engagement for the paediatric palliative care National Action Plan.
